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In Utero Stroke- Anyone go thru this????

Posts: 3

Joined 30-Mar-12

30-Mar-12 2:50 pm

I posted this over on TTC because I do want another someday. If anyone has gone thru this before, I could sure use some advice.

We recently just had our beautiful baby boy. I love him so much and so does my hubby. I have 2 girls from a previous marriage and so our son was my hubby's first baby. I had a great pregnancy minus some nausea the first 14 weeks and trouble keeping my blood sugar up towards the end.  We had planned for a C Section at 39 weeks but little buddy decided to come at 38 weeks. I had labored at home most of the day because my contractions were every 25 minutes and they said not to come in until they were closer. Since I was only 38 weeks they said I had to be dilating before they would do my C Section. So we went in later that evening and I was in labor and we had our boy.  Since he was born shortly after midnight we didn't get much sleep the first day and a half. The next night we sent him to the nursery for a few hours so I could rest. The nurse brought him in at 3am along with a NICU Nurse Practioner and said that our baby had been having seizures while in the nursery and they were taking him up to the NICU. My husband and I were in complete shock. We got ourselves together and went upstairs. Once we got up to his room in the NICU the Nurse Practioner explained why he could be having the seizures and then told us what testing they are wanting to do. First they did a spinal tap, then a CT, MRI, EEG and ECHO. They placed an IV so they could give him fluids and anti biotics in case of infection. Once the results of the CT and MRI came back we were hit with the worst news ever. They said that he had suffered a significant stroke on the left side and that was the cause of his seizures. I didn't know that an unborn baby could have a seizure and here we were with our perfect baby boy and find out he had a stroke. We met with the Neonatologist and my OB had also come up to check in on me. They both said that this could have been an accident and they may not know why it happened. My OB went back to the office and went thru my entire history and chart to see if there was something that they missed or a test they could have done but nothing came up. The Neurologist came in and I hated him. I thought he was the biggest jerk ever. He basically told us that our son would never have a normal life and would never walk, talk, run or play. He would have cerebral palsy. Our hearts sank as we heard him describe the life this perfect baby would have. They started our son on seizure meds that made him sleepy but he still nursed like a champ. Over the next few days he surprised them all. He acted like a perfect normal healthy baby. All of the physical exams he had were all normal. He had no loss of motion on the right side or anything. The outcome was lookign better and better. He was in the NICU for 3 days and got to go home the day after I was discharged. Since then we have had monthly visits with the physical therapist just to make sure he continues to hit his milestones. He sees the NICU follow up team once every 3 months and the neurologist every 4 months to just check up. His well baby exams are always normal. He continues to nurse well and is sleeping thru the night. He was originally supposed to be on the seizure meds for 6 months to a year but at his 1 month check with the neurologist, he said he didn't need them because he is doing so well and hadn't had a seizure since the hospital. During that visit with the neurologist, he was actually nice. He said that our son looked phenomenal and the whole outlook he had for his life changed. He said he thinks he will have a completely normal childhood and grow up and function normally with no effects from the stroke. He said nursing him is the best thing I could do  for him.

During the time we were in the NICU my husband said he thought about having another but after this he doesn't want anymore. Even though my OB has said that the chances of this happening again are very small I want one more. I really would like to have another boy. We planned him as far as timing ovulation and intercourse and all that. My husband said he doesn't want anymore and had talked about vasectomy. My heart sank. He hasn't gone thru with it. We recently went and saw a friend who had just delivered and we had a conversation on the way home about one more and the way he talked sounded like he may be ok with it.

I know we just delivered and my hormones are all crazy still but I can't shake this feeling of wanting one more. I try and rationalize all the reasons we shouldn't have another but the urge is still there. I told him that I would want them about 2 years apart, which would mean trying next summer.

Am I crazy for even thinking about having another after what happened to our little guy? Am I pushing our luck?

Everyday I thank God that I went into labor when I did because I play the what if game. What if I didn't go into labor when I did? What if he had another stroke before our planned C Section? What if I didn't have a C Section and labored naturally, what would have happened?

Any advice or thoughts are greatly appreciated.

Thanks for listening!

 

me if you can!

Posts: 4,771

Joined 9-Aug-09

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31-Mar-12 6:47 am
Wow, that is a lot to handle, but I'm so glad your little guy seems to be doing better in every way possible. I don't think you're crazy to want another one. Actually I know of a family up the street from us, and the same thing happened to their little girl, and I don't think she had the success your son is having, but they do have a second child with no issues. I think the timing is probably just bad for your DH right now. It's a hard thing to take in all at once, and I'm sure he feels a lot of grief and doesn't want that again. But I think in a year or so when you might want to try again you could probably have a much better conversation about it. Well I wish you the best, and I hope your little guy continues to surpass everything they thought he would do. He sounds like a really strong little fighter!

Heartbroken - 8.5 weeks 2006, Baby Boy - 2007, Baby Boy - 2012 2+ years of TTC, but you were worth the wait!

Posts: 3

Joined 30-Mar-12

2-Apr-12 8:27 am

He is definitely a fighter. He didn't even cry when they did his spinal tap.  I think DH is definitely scared as to what could happen. Especially since we have no cause for why it happened this time. We talked about it yesterday a little bit and he has at least agreed to think about it. We even talked about names for the next one. I still have some hope I guess.

Jen

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Joined 26-Dec-10

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17-Apr-12 5:15 pm
prayers with you and your baby. i hope mine will be just as much of a fighter. if i can help in some way i will, my baby girl passed away and my dh said the same thing. he didn't want to go through the pain of lossing another child even though the doctor said i only had a 3% chance of getting the infection again. i cried and cried and begged and finally he agreed. i got pregnant with identical twins but we lost one very early on. however her sister thrived. dd6 is daddy's girl. she beautiful and such a good baby, we can't imagine our lives without her. good luck with whatever you decide. hugs

Baby Bear Girl01, Baby Bear Girl03, Baby Bear Girl05, Baby Bear Girl09, Baby Bear Girl10Heartbroken, Baby Bear Girl11, Baby Bear Girl11Heartbroken, Baby Bear Boy12, Baby Bear Girl13Heartbroken and another little born sept 4th!!

Posts: 1

Joined 26-Jan-13

26-Jan-13 6:06 pm
Hello, When I read your story I felt a strong need to respond and let you know that you are not alone. I had a son in 2009 and the same thing happened to him, only they told me his stroke was not caused by his seizures; instead, they told me it happened in utero during my pregnancy, but they couldn't tell me how they came to that conclusion. After he was born he had two seizures. His second seizure was 7 minutes long and they had medicine at his bedside to stop the seizure, but never administered it. Luckily we are both blessed and our sons turned out fine with no abnormalities in development. I was unfortunately an uneducated young mom and didn't ask enough questions, but I am now studying obstetrics in nursing school and I have a strong feeling he had his stroke during my labor or during his seizures. I think it could have been prevented. I as well would like to have at least one more child, but I feel the same way as you. My advice would be to find an OB/GYN who specializes in high risk pregnancies for an extra peace of mind during your next pregnancy. Best of luck to you and God bless!
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