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PGD and Autism

constructionzone

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Joined 04-05-2009

Posts 70

constructionzone

Hi, I'm just wondering if anyone here has been allowed to do PGD/IVF to get a girl to reduce the risk of autism? I am in Australia and would like to know if it would be available to me? Any info greatly appreciated, thankyou!

Baby Boy04 Baby Boy05 Baby Boy08

Baby Girl due March 1st 2012!!! :)

IVF|PGD NOV 2010. BFN :(
FET JAN 2011. BFN. :(
FET JUNE 2011. BFP!!! :)

 

WantWarriorPrincess

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WantWarriorPrincess

No, no one has been permitted to do this, as far as I know. To paraphrase Dr. Potter on the issue (*very* loosely because he said this quite a while ago), the docs do not know what to look for in the PGD analysis to prevent autism, so they don't consider GS as an answer to ASD risk. In his defense, I will point out that saying you're doing GS for ASD sounds like a weak argument in comparison to people using it for hemophilia or other disorders than actually, really, truly can be averted with the right PGD screening of embryos.

For ASD, it is risk reduction, not true prevention, and it is hard to know (and seriously debated among researchers) how much risk is being reduced by adding a second X-chromsome. For example, Prof. S. Baron-Cohen of the UK's Cambridge argues that female ASD looks a bit different (namely, the deficits are less verbal and a lower rate of comorbid Sensory Processing Disorders) and is thus missed more often in girls, especially at higher IQs. The boy:girl ratio is only 3:2 in IQs under 80-ish (I can't recall the exact cutoff) but 9:1 above 120. He thinks smarter girls are better at hiding their problems, how they're not "getting" social cues and meanings. I know a woman with a little girl Aspie who would probably snort at the idea that having a girl means you can relax on the ASD fears.

Anyway, I understand their points, but still think it's a bit of a callous response to families with one or more special-needs boys with a disorder that, as best we know, is more prevalent in males than females. As I explained recently to a callous OB who was completely shocked by (and aghast at) the idea that people would go to all the trouble and expense of GS IVF/PGD for ASD risk reduction, hey, lady, it's the only tool we have. Blunt, uncertain, but it's the only tool in the toolbox currently.

It can't hurt to ask, explaining your circumstances. You might just find the right sympathetic RE who actually knows something about ASD and why you'd want GS to grab at every bit of risk reduction you could get. (I do believe they exist.) But do know that in places where GS is banned, their hands might be tied by strict rules for which disorders can be covered with GS.

WWP

Baby Boy '04 Baby Boy '07 Baby Boy '09 He's here!

 

trucksndolls

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trucksndolls

Hi ConstructionZone,

Funny you ask this question as I was just Pm'ing with another Aussie IG gal about this today.

A girlfriend of mine was telling me that Aussie IVF clinics will consider you for gender selection (PDG) in Austalia if you have 2 or more cases of Autism in your family. As Austism is more dominant in boys, this may give "medical reason" to go for a PDG girl.

KNow, I dont know the truth in this but it did come from a reliable source. If you are in this situation I would definately call a few IVF clinics & discuss the matter.

Love Ya!

 

Baby Boy 07 Baby Boy 08  Heartbroken Baby Boy Valentines Day 11 Heartbroken Baby Girl Aug 11 - always love & miss you my twin girl. Baby Boy 15/02/12

Lilypie Pregnancy tickers

 

AbbysMum

Olivia

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australia

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AbbysMum

I pmed you- this is what I did!!!

Liv


HeartbrokenOur Beautiful AbigailBaby Girl 23/9/02 - 12/10/02 We will love you forever and a day!


Aiden (5) Baby Boy, Declan (4) Baby Boy, Logan (3) Baby Boy, Lizzie (1) Baby Girl





 

jjn

material girl!

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Australia

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jjn

I did also and I know of another aussie with a similar story. It is definitely a possibility in Australia.
Baby Boy Baby Boy Baby Boy my IVF/PGD Baby Girl Check out my Blog www.in-gender.com/cs/blogs/jjn/default.aspx Lilypie 1st Birthday Ticker
 

WantWarriorPrincess

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WantWarriorPrincess

jjn:
It is definitely a possibility in Australia.

That is awesome to hear. I mean, you guys are paying out of pocket, right? So some kind of compassionate leniency seems reasonable. Part of the MS position, I think, was they were offering the sort for free for the genetic diseases, so I could see where getting something for free comes with a higher hurdle. But if you're paying, why not? It's not the like the docs have any other suggestion to help.

WWP

Baby Boy '04 Baby Boy '07 Baby Boy '09 He's here!

 

want2bblue

Victoria

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want2bblue

I believe you must have autism in your family- immediate family and/or their offspring- for most RE's to offer gender selection to off-set the chances of an autistic child (usually male).  Or at least I know of one RE in the States that feels that way.  I wouldn't be surprised if that were the case in most instances.  I find it hard to believe an RE would, just for example, allow a couple to opt for a girl for their first child (or for all girls period) just because they are scared they would have an autistic boy with no underlying reason (i.e. there being an existing autistic male in the family).

Baby Girl 5 years old   Baby Girl 3.5 years old


PGD/IVF: Transferred one Baby Boy embryo (compact morula) on August 9th. BFP for me! OHW! Due April 29th!


He's here!  9 pounds, 13 ounces and 22 inches long   AND SUCH A DOLL!  God, thank you!  Pray

 

Wishing On A Star :)

Tee

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Wishing On A Star :)

Thank you for asking this question. I have a son with ASD diagnosed last year and another with dyspraxia, both disorders predomanant in the male sex. I now know everything there is to know practically about both disorders and yes females do suffer the same genetic disorders, but I can tell you now I have been taking my boys to therapy for two and a half years and only seen one girl so far in the waiting rooms. Its always boys we meet there. Its one of the reasons I would prefer the female sex for once. Dont get me wrong, I would kill and die a horrible death for my quirky little chaps, it is a fact that this disorder is male predomanant. Even if they cannot search for the gene that causes it, they should let the basic facts do the talking.

Mother of 3 amazing lil Baby Boy

Hoping to do MS/PDG for some pink....Baby GirlPrayPray

 Me and DH 32, Married since 2000.


Luvin mum of 5,3, 14 months


Wishing and praying for a  hopefully Pray, but also knowing I am blessed Hugs Bear.

 

Wishing On A Star :)

Tee

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Girl

Ireland

Joined 07-29-2010

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Wishing On A Star :)

Can anyone pm me on their experience on doing PGD on the grounds of already having special needs children or a child with ASD. As that is the possition I am in. I would appreciate it so so much. I'm flying blind here and new to this forum.

please thanks.

Baby BoyBaby BoyBaby BoyPrayBaby Girl

 Me and DH 32, Married since 2000.


Luvin mum of 5,3, 14 months


Wishing and praying for a  hopefully Pray, but also knowing I am blessed Hugs Bear.

 

Wishing On A Star :)

Tee

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Ireland

Joined 07-29-2010

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Wishing On A Star :)

Hi there, I'm new to this...

Can you please please pm me. Confused Huh? I really need to get info on the subject. Thanks in advance..Happy

 Me and DH 32, Married since 2000.


Luvin mum of 5,3, 14 months


Wishing and praying for a  hopefully Pray, but also knowing I am blessed Hugs Bear.

 

Wilma_five

A girl for me...please!!!

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Netherlands

Joined 10-13-2008

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Wilma_five

 I am a mother of 5 boys, 2 of them have Asperger syndrom.

Wondering if I can do IVF/PGD legal in Europe, what do you think?

Baby Boy(2002) Baby Boy(2005) Baby Boy(2007) Baby Boy(2009) Baby Boy(2010)

Due with a Baby Bear Girl July 2013
 

constructionzone

Not Ranked

Joined 04-05-2009

Posts 70

constructionzone

Wow, can't believe I asked this question two years ago and it has popped back up. Just to update you I did end up being able to do IVF/PGD for purposes of reducing the risk of Autism. It was a long process, and I have now had two cycles which unfortunately have failed. I just had my last embryo transferred two days ago, so am eagerly awaiting the results!

Baby Boy04 Baby Boy05 Baby Boy08

Baby Girl due March 1st 2012!!! :)

IVF|PGD NOV 2010. BFN :(
FET JAN 2011. BFN. :(
FET JUNE 2011. BFP!!! :)

 

Lisvna

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Holland

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Lisvna

I write this in dutch because i can't explain it in English so maybe google can translate is..... Hoi, Je kan het proberen in het ziekenhuis in Maastricht.....Wii zijn nu midden in het proces en wachten op goedkeuring of niet. Ze zijn heel streng en alleen in ernstige gevallen van ziekte doen ze het. Ze hebben een lijst van ziektes die standaard in aanmerking komen, ik heb de lijst gezien maar autisme stond er niet tussen. Het wil niet zeggen dat je dan niet in aanmerking komt maar dan hangt het van persoonlijke omstandigheden af. Daarnaast is asperge volgens mij niet afhankelijk van geslacht dus zullen ze alleen op ziekte selecteren en niet op gewenst geslacht. Dat is anders dan als de afwijking geslachts gebonden is ( het is een andere test zei de arts). Ze zullen bij het terugplaatsen geen rekening houden met gewenst geslacht (als ze het dus al weten ) omdat dat dus verboden is als het niet medisch is. Wel kan je het gebruiken voor je verzekering want als je in Nederland wel de goedkeuring krijgt dan kan het zijn dat je verzekering het in het buitenland wil vergoeden en kan je daar dus vragen om geslachtsbepaling. Ik weet dat de wachtlijst hier in Nederland erg lang is. Reken minimaal op 1 à 2 jaar.......Succes!!!!!

me 1977
husband 1974
Baby Boy 2009
and an ivf/pgd/spermsort Baby Boy nov 2012 (thank you dr Savvas!)

June 2013 @Savvas: Ivf/pgd/spermsort for a Baby Girl or even Baby Girl Baby Girl

 

Wilma_five

A girl for me...please!!!

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Netherlands

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Wilma_five

 OH MY GOD!!!

You really made it happen!! Great news!

Really hope you have a sticky in there Good Luck Clover

Baby Boy(2002) Baby Boy(2005) Baby Boy(2007) Baby Boy(2009) Baby Boy(2010)

Due with a Baby Bear Girl July 2013
 

Wilma_five

A girl for me...please!!!

Not Ranked
Girl

Netherlands

Joined 10-13-2008

Posts 648

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Wilma_five

 Wauw!

I didn't know you we're also planning something in this "legal circuit".

Asgeres is indeed nog gender related but it is a fact that it occurs a lot more to boys (like 4 times).

1 to 2 years is no problem for me, I'm 30 so I can take the wait ;-)

I'm just gonna try. If it doens't work out, then I now i did try it!! 

Baby Boy(2002) Baby Boy(2005) Baby Boy(2007) Baby Boy(2009) Baby Boy(2010)

Due with a Baby Bear Girl July 2013
 
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