Who else has a child with SPD?

 My oldest son, 3 1/2 years old, has Sensory Processing Disorder. The thearpist said it would get better when he started school but it has gotten worse. And now he has broken his leg and it is driving us all up the wall. I just need to know I am not alone.

I have a DS with ASD who has many Sensory Issues. He wasn't diagnosed until much older (5yrs) but since then he has received weekly therapy and has improved immensely. When he was younger life was very stressful. Major meltdowns, anxiety attacks and many other issues. He too broke his leg (at age 4) and I can tell you they were the longest, worst 10 weeks of my life, as I'm sure they were for him too. You are not alone. Hang in there. For us, there were many hard years, but things have now improved so much. I hope they do for you and your family also.

My sister's son has been diagnosed w/ SPD.  He is in a special program (just turned 4) and receives a bunch of therapies from speech to OT.  My sisters main concern is the lack of social speech .   He will speak if he needs something or if you ask a question but minimally.  And there isnt too much social interation w/ cousins.. which is very upsetting for her.  So, with time there is improvement?  Thats great

Any advice for me to pass along to her? 

The meltdowns are hard. We still get them but they are no where near as bad as they used to be. As for the toilet training DS didn't TT until he was 4.5yrs. It was very frustrating but if I knew then what I know now I would have not stressed so much knowing that there was a reason for it iykwim and that he would get there eventually. He is still not night time tt. Hang in there. x

AnnaG1, I can't help much with the speech. That is actually one area we didn't have a lot of problems with. There was anxiety and stuttering, and difficulty finishing sentences, verbally completing ideas/thoughts etc but overall it was not as concerning as other problems we were having. Each child's sensory issues can vary greatly but with ds I found therapy helped a lot and we have seen huge improvements. I also think getting older and maturing has had a lot to do with it. His therapy was good for me too as we learnt ways to help and deal with his sensory issues and also helped us understand what was going on. If that makes sense. I have also been to seminars and special programs that discussed things to do with ASD, parenting, caring, disciplinning, education, behavioural problems etc and I have found these to be very beneficial. I don't know whether your nephew's special program offers education days or similar but I always found them worthwhile.

Hi you are not alone. My DD has SPD and ADHD. She has tactile, motor planning, low muscle tone and vestibular issues. We only really picked it up when she started school and her handwriting was all over the show with letters being reversed and mixing of capitals and small letters. She has a hard time holding her pencil correctly and squeezes it to death. Looking back there have been many things pointing to it, but I just put it all down to immaturity. She has been going to OT for over a year now and there has been a lot of improvement, but still a long way to go. OT is a slow journey. I'm told she will eventually overcome it - just gotta be patient!  

Thanks for the info Chooks-

Sadly, it seems like my sisters son has some more issues than what others are experiencing- or so it seems from my perspective, although Im not the mother so only she really knows her son the best.  I think the family would just love to see more social interaction w/ peeers and more speech.  He will ask for things when he wants, such as food - or a show that he wants to watch-  but right now theres no "conversation " type of speech.    Im always saddened by out phone conversations and her heavy heart.  But, it does seem like he is making great improvements and I always remind her of "last year at this time, he wasnt able to do ------- and now he can totally do that"

 My son is also different than a few others. He is so picky about what he eats that he won't eat. He likes his food spicy and just right. He has an extremely high pain tolerance; the only time I have seen him slightly cry at pain is when he broke his leg 4 weeks ago. Because of this he doesn't relieze other people feel pain so he inflicts pain on me and his brother, Daddy is safe. He also is have speech problems in that he didn't start talking until he was 3 and not 6 months later he is slightly talking but he has made up his own words for things and gets really upset when we don't understand him. He throws a fit whenever he gets anything sticky or wet on him, so potty training going pee was fine. But because of not feeling much pain, he can't feel when he has to poo and it is driving me up the wall. He also is sooooo hyper it is unbelievable, but they said ADHD comes with SPD. He had speech and OT till he was 3, now we have to wait till he has an offical diagnosis before he can have any more therapy. 

 deff not alone! my 26 month old has it, and i think i am going crazy most days! he refused to wear clothes sometimes, if i raise my voice*slightly* at him, he crys for 30 mins at a time, if he gets set off, he goes into tantrums that last hours! your not alone. the worst part is when ppl don't understand, and come over to my child in walmart and talk to him, it sets him off, and he goes into a crying spell :( i am seeing a therapist in a few weeks to start intergration, lets hope this helps!