My ds4 has a pacemaker but not due to a heart problem.
He has Reflex Anoxic Seizures (RAS).
When he fell over etc. he would cry for a few secs, eyes would roll and his whole body would go rigid and he would hold his breath until he would blackout. Thankfully he would start breathing again once he passed out but would be out cold for a minute or so. When he came around he would be very upset and lethargic and 9 times out of 10 would go back to sleep for a few hours. He would sometimes do this 3 times a day :(
The health professionals said he was breath holding and to ignore it. I knew better, besides, how can a 6 month old breath hold to the point of passing out?!?
We eventually found out (after several hospital tests/ scans etc) that his heart was slowing and stopping for anything up to 22 secs... very scary thought!!
We had to make the decision to have a pacemaker fitted as it is not standard procedure. Thank you NHS!! He has had his since he was 3yrs 3 mths old (now 4yrs 7 months) and it has been an absolute godsend for us. No more blackouts!!