Thank you. Aislinn is doing amazing!!!! Her appetite is growing by the day, she has already gotten up to 12lbs 2oz. We saw her cardiologist yesterday for a follow-up and he was very pleased by how she is doing. Her pulmonary hypertension is gone, she does not need oxygen when we are down at lower elevations but does still need it at home for now. Her sats off o2 at home are around 85, he said she needs to be at 92 or better before we can take the o2 away. We have to check her sats off o2 once a week between now and her next cardio appt on April 19th. Hopefully she will continue to get better up here and it will be gone soon. We have little stickers to put on her face to hold the cannula in place, well we now have to put new stickers on every day because she won't leave it alone! It's so frustrating to have to put it back in her nose 50 times a day. LOL She hates it as much as I do. So things are getting better, just a little longer for the o2. Oh and the right side of her heart is back down to normal size, the left is still a little large but getting better. That is our update for now, thanks again for reading.
momofmany...I want to thank you so much for your thoughts and prayers. I don't feel like a strong woman, I'm going crazy with all of this stuff going on, but I'm glad you think so. :) Although I can't imagine how I inspire you but I'll go with it. LOL Take care and I'll continue to update on Aislinns progress.