My medications are now ordered and paid for! Here is a breakdown for anyone interested:
Gonal-F: £1006 (!!!!!) ETA: I am on a much higher dose this cycle.
Medrol Dosepack: US$16.64
Ovidrel x2: $US100.00
As I mentioned earlier, I was fortunate enough to recieve 2 boxes of brand new unopened Menopur from an IG lady who had achieved her dream. I am extremely thankful to her and hope to help someone else out with any of my leftover meds.
I also have a brand new Lupron 2 Week Kit left over from my first cycle which I can use this cycle. Thankfully it does not expire until the end of the year.
I am still waiting on confirmation for the Medrol, Ovidrel, E2 but I am not expecting it to be too expensive. Maybe £200 (ETA: The actual cost was £145)
So, to anyone from the UK considering this journey, you can see that medications are not cheap! Oh how great it must be to live in the US & have insurance to cover infertility drugs!! This is certainly an expensive business.
I start BCP (Marvellon) tommorrow, which will be Day 2 of AF. It is all happening!! As I have mentioned in my Blog before, I had my GP (here in the UK) write me a prescription then had it filled for free at my local chemist. It is the only drug needed for this whole IVF thing that does not cost a bomb! I am not really looking forward to taking it as last time it made me feel so sick. Oh well, it is all for the 'cause'. I have such a good feeling about this cycle - everything is falling into place. I do know to expect some hiccups along the way, however; so far so good...... Here's to sttaying positive.
I have my schedule and we have booked our flights, accomodation & car hire. My local monitoring clinic in London has just confirmed my u/s dates, so only thing left to do is pay for medications and wait for them to be delivered.
My Gonal-F dosage will start at 300 this cycle (a much higher dose than last time) and it looks like I will stay on that dosage unless things change. The only bad thing about that is the cost LOL - Gonal-F is expensive! I have, however, been fortunate enough to recieve some brand new & unopened Menopur through an IG lady who achieved her dream. One day I hope to donate to someone here on IG too.
I have been thinking a lot about my ectopic pregnancy and the possibility of having another. It does frighten me and it is something I worry about. I am willing this cycle to work with everything I have. Come on baby girl!!!!
We have just now booked our flights for our mid-October cycle. Everything is starting to feel real again. We are actually doing this agian!! I have a great positive feeling about this second cycle. It *will* work, I know it!!
I have heard back from my Nurse & our October cycle is going ahead! I am so excited! I have a really good feeling about this and I am hoping and praying that I will be a '2nd Hit Wonder', and that this cycle will bring us our daughter. I am putting everything that has gone before out of my mind and I am focusing on planning our 2nd big trip to LA.
Obviously no one knows we are doing IVF so it will be kind of tricky to justify another big trip to LA - seeing as we were only there in April. I am kind of dreading all the questions but DH and I have talked about it and we know that we are doing the right thing for our family and that it is really not of any concern to anyone else.
I am still waiting on our schedule but I do have a rough idea when ER & ET will take place. I guess the next step will be organising flights and accommodation & booking monitoring appointments with my local clinic in London. It all seems so easy the second time around - let's hope it all runs as smoothly.
With this cycle going ahead, it also means that I will get to spend time with my lovely IG friend, Wannab! Her & her DH were so, so kind to me back in April and I am so excited to be able to spend time with her just before she gives birth to her little princess, Zoe.
Finally, 6 weeks after my 'negative' beta reading, AF has arrived. I am so happy that we still might actually be able to cycle again in October. I almost can't believe that it has taken so long to get to this point - considering I last cycled in April.
I am in contact with Lori and awaiting her response as to weather an October cycle is possible. Fingers crossed. I LOVE the idea if a Summer 2011 baby :)
I had another Beta on Monday and I am happy to report that it is now...2 !!!!
I am going to contact my nurse and see if a beta of "2" is as good as zero - I really have no idea, but I hope so! I will report back, but for now, I am happy that things are drawing to a close.
I had my telephone consultation with Dr P last night. We talked mainly about my the management of my ectopic & how he needs to see my beta go back down to zero. I will be going in to see my local Dr again for another blood draw and if my HCG is still elevated we will need to discuss another course of action: Methotrexate. I am hoping and praying that I won't need this & that my reading will already be at zero.
I don't think I have ever prayed so hard for a NEGATIVE BETA.
Oh, please let me hear ZERO on Monday........
I have spent the last few weeks researching supplements to take in preparation for my next IVF cycle. In addition addition my regular Pre-Natal (Sanatogen & Omega3), DHEA (which Michaela shippped to me from the US) & Royal Jelly/Bee Pollen, I am also taking 2 x 100mg CoQ10 daily. I also plan on adding L-Arginine next week.
For those in the UK, I was able to purchase both the Royal Jelly (500mg) & Bee Pollen (500mg) at Holland & Barrrett. Both were around £10 each. The CoQ10 was much more expensive (£37, for 90 tablets, at Boots). L-Arginie is also available at Holland & Barrett and is only around £5 for 50 tablets (bargain!).
I am also researching Spirulina (microscopic Blue Green Algae) and Wheat Grass as supplements in preparation for IVF.
It is now 2 weeks, well 16 days, post surgery and my stitches are healing nicely. Another blood draw has shown that my numbers are still around 2000, *sigh*, so I go back in another 2 weeks where I am hoping to see a big fat zero measurement. I think the raised HCG is partly responsible for my tiredness at the moment. Experiencing pregnancy symptoms when not even pregnant truly sucks!
On a more positive front, I have started a 4 month course of DHEA and will also be adding in Royal Jelly & Bee Pollen. I have the wonderful Michaela to thank for sending me a huge box of it from the US! I will also be taking my usual pre-pregnancy vitamin/fish oils etc. My nurse has also prescribed Metformin, as I had a borderline Insulin Resistence result, which I will begin closer to my cycle.
In other news, I met with my (home) Doctor yesterday and we discussed my general fertility, post ectopic surgery. He said that the damage to my tube *may* effect things, although it would be hard to say and really, "only time will tell".
I got my Beta back today, one week post surgery, and my numbers have now dropped to below 3000 (down from "over 15,000"). This is good news as I was worrying about the risk of further surgery had the numbers continue to climb. For those wondering, in order to save my fallopian tube, a small amount of tissue was left behind. The danger of taking this course of action (rather than removing the tube altogether) is that the tissue *can* continue to grow, resulting in further surgery & removal of the tube.
As far as how I am feeling physically, the stitches in my tummy are still sore but they are improving every day. Emotionally, I am finding this really hard. I am trying my very best to be positive but thinking about the "what ifs" gets me down.
After reading the replies to my previous post & blog update, I became increasingly concerned about my high beta numbers and the possibility of an ectopic. The Early Pregnancy Unit at my local hospital had instructed me to come back for an additional beta 'next week' which seemed like a long time to wait around if this was indeed an ectopic.
Saturday morning (1 day after my last post) I had a dull ache/cramp type pain. Certainly not sharp or excruciating pain, which would warrant immediate action. However, I *was* concerned about the pain and just had a bad feeling about it so I rang the hospital anyway. It was established that I should present myself to A&E within the hour.
Once there, I my blood pressure was so low (symptom of an ectopic) that they were unable to draw my blood. They tried 4 times. They also placed a cannular into my hand & the pain was unbearable (and I have had cannular's before). I was admitted to a ward and told I was to have an emergency laparoscopy (investigative keyhole surgery with the use of a camera) to remove the pregnancy & it was likely I would lose my fallopian tube.
Obviously I was shocked & devestated and worried as I was told an ectopic is a serious condition that can be fatal. I cried and cried until they put me under. I was really scared & just felt like I had not time to prepare myself for what was about to happen.
After I had time to recover from the surgery I was told that I was "very, very lucky" as my left tube was on the brink of rupture. They were also able remove the pregnancy and save my fallopian tube, which I am thankful for.
I am now at home recovering from the surgery, which required 4 incisions - one through my belly button (for the camera) and 3 others (for the instruments). I am very sore & tired but grateful for my health. I now have closure.
For anyone wondering how an ectopic pregnancy can happen with IVF, it is possible and the statistics show you are more likely to have an ectopic pregnancy with IVF than a natural conception.
From the internet: ".. you might ask how IVF could possibly
increase the chances of ectopic pregnancy, since IVF "bypasses" the
fallopian tubes altogether. Fertility specialists believe that ectopic
pregnancy may occur if, when the embryos are transferred to the womb,
they are placed too high in the womb cavity. The embryos then have a
greater chance of "wandering" and implanting themselves in places where
they are not supposed to be, such as the fallopian tubes. Embryos could
also make their way into the fallopian tubes if they are injected into
the womb with too much force. In the past, doctors would block the
fallopian tubes during IVF treatment to try and prevent ectopic
pregnancy from occurring. This method is no longer used."
And.."Between 2 and 5 % of IVF treatments result in ectopic pregnancy. If you
are undergoing either IVF or IUI treatment and you do get pregnant, keep
an eye out for symptoms of an ectopic pregnancy. If you believe you are experiencing any of
these symptoms, get medical help immediately."
For me, this chapter is now closed and I can move on with my recovery & try to keep positive for a future IVF cycle.
Thank you everyone for your prayers, positive thoughts and messages of support.
After my 3rd beta, it appeared things were not progressing as they should and it was assumed that I was most likely suffering from a blighted ovum. I continued to have beta draws and then went on to miscarry (or what I thought was a miscarriage) at 7 weeks.
As I am still being monitored, I had yet another beta draw today, and the number came back at over 15,000 (!!). An ultrasound has concluded that I do not have a uterine pregnancy and now the concern has fallen to an ectopic. I am so worried about this. I have been reading things on the internet about the dangers of ectopic pregnancy and I am scared. I just want this whole nightmare to end. I need closure.
I just got the call. It is all over. I am so, so sad
ETA: My Beta number was 474 - it hadn't doubled but it *did* rise.
We are now back safely in the UK after our extended stay in California. I am going to London on Thursday for my 3rd Beta draw. I can not go earlier so I just need to wait it out. Right now I am feeling very, very tired and I have very sore boobs and tingly nipples. Also, I have sore gums - as I did when I was pregnant with my son. All good signs, but only the Beta will tell if things are progressing as they should. I am still getting positives when I test which is encouraging. We are continuing to pray for strong numbers.
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